Seeing that I've left you hanging on the edge of what is wrong with me, I'm sure it's time for an update.
I have been back and forth to Cambridge, Addenbrookes, Spire Lea, and Lakenheath seeing doctors and being tested for so many things. I probably need a tranfusion myself after the many draws they have taken. I have faith that whatever it is, God can deal with it or move back to the states and hole ourselves up on a ranch somewhere, acting suspiciously till the feds come and see that we are doing nothing more than growing herbs and becoming nudists.(okay-you KNOW I'd never do that. People have known me for years and have never seen my skin except from the elbow or midcalf down!)
Okay now back to reality, so after seeing all of these drs, waiting for weeks for test results, being called on my PERSONAL cellphone by drs (one called me 3 times in ONE day, mind you. April says they call that stalking, I think I'm popular, ha ha),living with horrible joint and muscle pain and having to crawl to get around this house to get things done, I saw the rheumatologist ONE LAST TIME on Thursday.
(Did I tell you I put 300 miles on the van this week alone? Darryl had a hole in his heart plugged up on Wed -an ASD, they call it, and I had 2 appointments on that same day which had me driving from Lakenheath to Papworth, to Cambridge, back to Papworth, back through Cambridge, and then home. He ended up staying the night and I had to go and pick him up at lunchtime the next morning at Papworth, past Cambridge, back to Cambridge to get him lunch at McD's and then home. So you see where I'm coming from? Going round in circles! Ha, ha, ha!) Yes, I feel like I am losing it. He seems to be doing alright except for overdoing it the first 2 days, but he only has a half inch cut on his groin instead of having his chest cracked open, so he got away easy, THANK the Lord! If he is so hurt now, I could only imagine..............
Now back to me.... So the new diagnosis is UNIDENTIFIABLE! Can you believe that? Dr. Speed kept telling me she was sorry, but she couldn't figure out what was wrong with me except that something was wrong and they couldn't pinpoint it. Maybe it is pregnancy related and will go away after the baby is born. She couldn't guarantee that, but she was sorry and if my symptoms got worse then she is a phone call away.
Are you as frustrated as I am? I bet not! I just know I need to know something and I want to not feel pain and achiness all the time. I want to be normal again and hop out of bed in the morning to get breakfast started. I want to sit down and not have to adjust the pillows so my legs won't hurt. I want to be able to go to bed and not have to move and shift to be comfortable for 30 minutes then have some lightening pain shoot through my joints facilitating me having to reposition 3 pillows and recomfort myself again. I want to walk to the bathroom in the middle of the night without fear of falling and having to use any solid piece of furniture to support my LONG 15 foot journey to a 2 hour relief.
I WANT TO BE ME AGAIN!!
I pray for something to help me be patient and have peace right now. I pray for my family who has half a me, and a grumpy half of me to deal with. Even Mr needs prayer for his speedy recovery so I can get him back to work and not be angry that he is sitting around playing video games and watching movies(resting, they call it) while I am trying to get things done.(Is that selfish?)
Pray for my niece to make it here safely on Thursday morning so I can hand over the reigns to her.
And most of all, I pray for Chloe who is about to be knocked out of her pole position by a new short person in town. She and I have so much fun together that I can't imagine someone else coming between us.
Lord help me!
Showing posts with label Mr. Show all posts
Showing posts with label Mr. Show all posts
Sunday, May 9, 2010
Saturday, May 23, 2009
A sad birthday and a cut throat!
Okay, May 22nd was Mr's birthday. I hadn't really planned anything special since I was shamed two weeks ago because I though he was turning 45 and he was actually turning 46! Somewhere I lost some time , I guess. I was shocked that I got it wrong and if I were him I should have been flattered to have lost a year from "Ye Olde Lifeclock."
So anyways, it just happens that "Spring Chicken" has been having repeated bouts of tonsillitis this year,(So far a total of 6 bouts since January) and I took her to the pediatric clinic a gently demanded that they get rid of those pesky things since she was missing school at least a week out of every month with fevers and all. "No protesto" from the Dr and we were headed out with the referral to the Ear Nose and Throat clinic within 10 minutes. (Just hold on- there is a correlation with this and the birthday thing, trust me!)So one week later, we are sitting at the ENT clinic waiting for this mysterious Dr whom you have to go through hell and high water to see and he was running late. Not 15 minutes late, no, ONE HOUR late. I was slated to go to an appt when the first appt was over, so Darryl had to reschedule that and to top that I had "Action toddler" with me! Now she roamed the hallways looking cute (as my mother would say), and we went up and down the elevator a dozen or so times and once she nearly jumped out right as the doors were closing, but mom is still quick, you know! Dad was on his way to get her and bless him, he was running late too!
Time was a'wasting and I had things to do. So I disappear with "Action toddler" and when I come back, April, aka "Spring Chicken" is gone!! The techs see my distress and show me my daughter who is waiting (yes, still waiting) in an exam room. More to explore for Chloe aka "Action Toddler"! Lord, give me strength- I can't do this much longer! Then is walks the Dr-A fellow who looks about Darryls' age with braces on(which April says makes everyone look younger-is that a hint, April?) and a BIG smile. He says April is a prime candidate for tonsillectomy and he will be gone for most of June so they will call us for an appt at the end of June. In walks Mr, he grabs Chloe, says "Hello" to the Dr and out the door he goes! So Dr explains a bit more of the procedure and what to expect when it happens and asks if we have any more questions. "Hmmm",I say, "not really but if you can squeeze us in before you leave, then please do so". "Okay", he says and then off he goes a'smiling and on to his next patient.
So we go to the front desk, hand over the request for the tonsillectomy and ask her to call us if they get a cancellation.
Surprising us, 48 hrs later we get a call saying she can have it done on the 22nd of May if we want to. Umm, you don't have to ask me twice!! YEESSS!
In my thoughtless moment, I was only thinking of April who during this last bout of fevers looked at me with red eyes and a 103 degree temperature with big swollen tonsils and said" Mom, they have to take my tonsils out, I can't live like this being sick all the time." I momentarily forgot that Darryls' birthday was on the 22nd and the prom was a week later and she wasn't supposed to be around a large group of people,and the last few weeks of school were happening, didn't take into account all of the social implications of having this surgery right now. SO WHAT! My child was sick and she needed this done ASAP! I prayed about it and had such a peaceful feeling that this was the right time and place for it to be done. That other stuff dosen't matter even if it has cost a lot of money, sniff, sniff.
Now back to the whole point of this- She got her tonsils and adenoids out on my poor husbands birthday! It was a rough morning, but we were done and home by 12:30 and the birthday party seemed to drag on all day after that, but he had some really funny birthday cards and a really delicious dinner of strange and exotic Indian foods and it all was topped off with a chocolate mayonnaise cake that had the most divine butterscotch icing on it. We laughed and cried and most of all we were thankful to be together and have him for however many years he has been here.
The downside to this all? Poor April sitting at the table watching us eat it all.
She will get hers as soon as she recovers- we all know how that girl loves to eat!
So anyways, it just happens that "Spring Chicken" has been having repeated bouts of tonsillitis this year,(So far a total of 6 bouts since January) and I took her to the pediatric clinic a gently demanded that they get rid of those pesky things since she was missing school at least a week out of every month with fevers and all. "No protesto" from the Dr and we were headed out with the referral to the Ear Nose and Throat clinic within 10 minutes. (Just hold on- there is a correlation with this and the birthday thing, trust me!)So one week later, we are sitting at the ENT clinic waiting for this mysterious Dr whom you have to go through hell and high water to see and he was running late. Not 15 minutes late, no, ONE HOUR late. I was slated to go to an appt when the first appt was over, so Darryl had to reschedule that and to top that I had "Action toddler" with me! Now she roamed the hallways looking cute (as my mother would say), and we went up and down the elevator a dozen or so times and once she nearly jumped out right as the doors were closing, but mom is still quick, you know! Dad was on his way to get her and bless him, he was running late too!
Time was a'wasting and I had things to do. So I disappear with "Action toddler" and when I come back, April, aka "Spring Chicken" is gone!! The techs see my distress and show me my daughter who is waiting (yes, still waiting) in an exam room. More to explore for Chloe aka "Action Toddler"! Lord, give me strength- I can't do this much longer! Then is walks the Dr-A fellow who looks about Darryls' age with braces on(which April says makes everyone look younger-is that a hint, April?) and a BIG smile. He says April is a prime candidate for tonsillectomy and he will be gone for most of June so they will call us for an appt at the end of June. In walks Mr, he grabs Chloe, says "Hello" to the Dr and out the door he goes! So Dr explains a bit more of the procedure and what to expect when it happens and asks if we have any more questions. "Hmmm",I say, "not really but if you can squeeze us in before you leave, then please do so". "Okay", he says and then off he goes a'smiling and on to his next patient.
So we go to the front desk, hand over the request for the tonsillectomy and ask her to call us if they get a cancellation.
Surprising us, 48 hrs later we get a call saying she can have it done on the 22nd of May if we want to. Umm, you don't have to ask me twice!! YEESSS!
In my thoughtless moment, I was only thinking of April who during this last bout of fevers looked at me with red eyes and a 103 degree temperature with big swollen tonsils and said" Mom, they have to take my tonsils out, I can't live like this being sick all the time." I momentarily forgot that Darryls' birthday was on the 22nd and the prom was a week later and she wasn't supposed to be around a large group of people,and the last few weeks of school were happening, didn't take into account all of the social implications of having this surgery right now. SO WHAT! My child was sick and she needed this done ASAP! I prayed about it and had such a peaceful feeling that this was the right time and place for it to be done. That other stuff dosen't matter even if it has cost a lot of money, sniff, sniff.
Now back to the whole point of this- She got her tonsils and adenoids out on my poor husbands birthday! It was a rough morning, but we were done and home by 12:30 and the birthday party seemed to drag on all day after that, but he had some really funny birthday cards and a really delicious dinner of strange and exotic Indian foods and it all was topped off with a chocolate mayonnaise cake that had the most divine butterscotch icing on it. We laughed and cried and most of all we were thankful to be together and have him for however many years he has been here.
The downside to this all? Poor April sitting at the table watching us eat it all.
She will get hers as soon as she recovers- we all know how that girl loves to eat!
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